Cancer care is becoming increasingly complex. In an effort towards more individualized patient treatment, increasing numbers of disease sub-classifications are proposed following fundamental, translational and clinical research. Novel research strategies are needed, in large patient groups.

The Dutch Pancreatic Cancer Project (PACAP) is globally one of the largest national collaborative efforst for registry and biobanking projects. The PACAP project is an initiative of the Dutch Pancreatic Cancer Group (DPCG).

PACAP provides the infrastructure for large scale collection of clinical data, patient reported outcomes (PRO), blood, and tissue of patients with pancreatic or periampullary tumors in the Netherlands. PACAP aims to facilitate national and international research to improve the treatment and outcomes of patients with pancreatic and periampullary tumors using a flat hierarchy.

Clinical and patient reported data, tumor tissue, and blood samples are obtained after informed consent of the patient. By collaborating with existing organizations among others as the Dutch Comprehensive Cancer Organization (IKNL), Parelsnoer Institute, Profiles, and the Dutch Institute for Clinical Auditing (DICA), the time investment of a center per patient is low. Data is available to all and centers are actively involved in scientific research through the national multidisciplinary tumor working group in a flat hierarchy: the Dutch Pancreatic Cancer Group (DPCG), and the scientific committee of the DPCG.

For more information on the PACAP project, please do not hesitate to contact us.